Tuesday, October 30

Medicine woes

Been out of a medicine (LDN) I've been taking for MS, since early last week. Went to the doctor's office om Friday because they wouldn't refill is w/o seeing me first. Then they wrote the "new" prescription refill wrong. Called the office on Friday afternoon last week and left a urgent message. Went and talked to them in PERSON on Saturday, have called the office AGAIN today, and I STILL haven't heard a fucking word! :-(

Update: Called again and talked to a nurse about it today (Tues.), who talked to the doctor, who wouldn't rewrite the prescription for 3 mg. because that medicine "only comes in 50 mg. tablets". DUH! That's why I have it COMPOUNDED with 3 mg. of the tablet with the rest being filler to fill the CAPSULE. Not a tablet!! The nurse then told me that the doctor doesn't want to have a pharmacy in Florida (where I've been getting refills for 5 yrs) do the compounding for someone in Texas. I then told her, "Walgreen's does compounding right here in Austin". Yet the doctor INSISTED that I just split the tablet in quarters and then take 1 quarter in the morning and one in the evening. Again, I told the nurse that I would then be taking 12.5 mg. twice a day after I've been taking 3 mg/day for 5 years. I once took 4.5 mg/day and it was TOO MUCH, so I refuse to take 12.5 mg doses twice a day! The doctor told the nurse that she didn't understand why the doctor she is replacing would prescribe only 3 mg doses (50 mg tablet form is to help heroin addicts kick their habit, which I don't have). That's when I told the nurse that he didn't, he just wrote a refill for it because a doctor in Missouri had been writing it for 3 mg capsules for the last 5 years. SIGH. I told the nurse to give the doctor the URL for the site explaining the medicine and reasons for that dosage, then I faxed them/her the first page of the web site. If push comes to shove, I do have a appointment with a neurologist in November a few weeks from now. Although I've been completely out of said medicine since early last week :-( Maybe I don't really need it anyway. :( I do want to change clinics though! 


Friday, October 5

Stressed - tired - both

Because I'm on the go running teenage girls to and from work and trying to keep up with everything life throws up. My tentative schedule Monday thru Friday most weeks:

01) Bedtime: Somewhere between 11 p.m. and midnight.

02) Wake up at 3:00 a.m. to take daughter to work by 4 a.m.

03) Get home about 4:10 a.m. - back to bed by 4:30 a.m.

04) Alarm is set for 9:30 a.m. so I can get up, make breakfast for my son and I, and get a little homework done. Lately I've been unable to get out of bed before 10:30-11 a.m (fatigue? Depression? Both?)

05) Pick up daughter work at by 12:30 p.m. Back home between 1-1:30 p.m. - time for lunch.

06) Get a little more homework done after making/eating lunch (sometimes).

07) Take the other girl to work by 4:15 p.m. - home by 4:30-4:45 p.m.

08) Do any shopping that needs done, which luckily isn't every day.

09) Daughter goes to bed between 5:30-6:30 p.m

10) By 5:30-6 p.m I'm tired from going on and off all day, so have a *really* hard time getting motivated to even look at schoolwork, let alone actually doing it. Plus supper for the boy and I needs to be made and eaten.

11) 9-9:15 p.m. - leave to pick up 2nd worker from work. Get home between 9:45-10 p.m.

12) Try to relax a little before going to bed.

Then every other Wednesday I have a bowling night with friends. Every Wednesday is supposed to be park-day with other homeschooling parents/kids. Then there's housework (laundry, vacuuming, litter box cleaning, etc.) that needs to be done, which I do get help with, but still.

If anyone wants to go anywhere like the mall, a park, swimming, or something else, I have to drive because there's not time for them to take the bus which takes 2 hours go get anywhere because of all the stops at bus stops, not counting time to get back home.

At some point I should (but usually don't) find some "me time" in there.

So basically, I'm unsure about how long I can keep all this up, since stress and MS does NOT mix well. Hence why I said earlier I'm having trouble doing life AND school (which school is only like 5 or 6 more classes by June 2012, not counting the 2 I'm in right now, and another which starts on October 28th [making 3 classes for this quarter all at the same time], sigh), which is why I DIDN'T for 11 years in RURAL Missouri. But we're in the city now, so... ?

I'm tired!